All the King's Horses and All the King's Men would not put Christian back together again...

 Christian is home from the hospital after a flare up of the original TM assault. He responded well to the treatment and didn’t need any cathing after 12 hours of the first steroid IV infusion. They had a MRI study done of both the brain and spinal cord. It confirmed that no new lesions were present. However, it did show atrophy of the spinal cord; which means the spinal cord did not regenerate from the damage done. While in the hospital the FIRST time, Doctor Lotze, explained it to me like this….C’s spinal cord was hit hard by a storm, damaging it.  But the body has electricians and they would go rewire the system. Electricians are over worked and underpaid; so often times they show up late and work slow. He told me to be patient and not give up hope. That is why he gave C the six month window of opportunity to improve…he was expecting the cavalry to come through in the end.  Fast forward to THIS hospital stay and his most recent MRI. The attending neurological doctor told me that C’s condition would not improve because his body did not fix the damage done by TM, that his spinal cord tissue had now died. As I type these words, vomit came into my throat and tears welled in my eyes. I refuse to hear that. I need to hear those words from Doctor Lotze, unfortunately he is out of town for the next two weeks. So I am impatiently waiting but I have already decided how I will respond if he tells me the same thing.  I know there is always HOPE in Jesus, our Healer but there comes a time to deal with what is right in front of you and pray for something better. This will be my response. I hope everyone can respect that. C will still benefit from Physical and Occupational therapy. That will re-strengthen what was weakened, and  re-teach what was forgotten, and GOD WILLING re-gain what was lost. This will also be his time to learn how to accomplish tasks as a boy who is paralyzed and had limited use of his fingers. We will also set goals; so C can plow right through them. He is determined.  And if by GOD’s grace his legs move, his therapists and I will make sure they are ready! Thank-You so much for your prayers, and continued support. We (Jack and I) are in this for the long haul. We will exhaust every possibility and not stop until C’s potential is maxed out; giving him every chance, every opportunity of a life uninterrupted by Transverse Myelitis. Please keep praying for Christian. We believe in miracles.